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Nonprofit Profile

MitoActon

Jeannie Freeman, Operations & Finance Manager
PO Box 310
Novi, MI 48376
(888) 648-6228

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.

For over 14 years, MitoAction has been transforming the lives of families affected by mitochondrial disease. Our mission is to improve the quality of life for children, adults and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.  These specific programs include our Mito411 Helpline, weekly support groups, live education events, a scholarship program for college-aged students affected by mitochondrial disease, Marcel's Way Family Fund which provides support to ease the financial burden of disease, Expert Series Podcasts giving the community access to experts in the field of mitochondrial medicine, Matthew Harty Camper Fund which sends children with mitochondria disease to summer camp, our website which provides significant educational resources for the community and our new MitoAction Mobile App which provides a platform for families to manage their disease and communicate and coordinate with their clinical team, while helping us to learn more about the natural history of this disease. New is 2020, through a new partnership MitoAction will grant once in a lifetime wishes for children with mitochondrial disease.

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Watch a video about MitoActon!